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 EVER HEARD OF CAAP PROTOCOL
 
 8/17/2008 9:18:41 PM
NOELLEAO
8 posts


EVER HEARD OF CAAP PROTOCOL

HI  This is our first time to use this site. I just need to talk to people who feel same way as myself and my husband and who know what it feels like to go through all this. Have been trying for a child for 5 years now. We are the only couple out of our friends who dont have any. Done 1 IUI ,2 IVF that didnt get to implantation stage because my eggs were not great quality . Was attending Merrion Clinic but have now changed to Sims , they seem to be very good. They are trying this new treatment called the CAAP Protocol .It intails going on birth control pill for 6 weeks ,down regulating by injection rather than sniffer , which I am on now. You then inject Cetrotide, which help control bodys hormonal responses  which effect development of eggs. You also use Estrafem tablets and Estraderm patches and then go onto the Puregon which mine will be 700mgs. All this is meant to change the message from your Pitutary gland to your ovaries when you are ovulating. We have only been given 1 per cent chance for this to work. We must be mad but allways said we would give IVF 3 goes. This is like a closure treatment but I am really praying it will work .It is all getting to much for me dont know if I will be able for all these injections but have to try it. Has anyone ever heard of this treatment? 

Love and prayers to everyone. 

NOELLIE XXX   

 

 8/17/2008 10:11:54 PM
Katherine
14 posts


Re: EVER HEARD OF CAAP PROTOCOL
Hi Noelleao.
Welcome to the NISIG site and I hope you will find the support you need from this discussion forum. So many others feel as you do and I can identify with your feelings of frustration and hopelessness. We were trying for over 5 years to conceive a child while those around us seemed to be producing children without any difficulty - even those who said they didn't want kids! It is such a painfully difficult time and so hard for others, not in your position to understand or identify with. However, rest assured that here there are many of us who understand exactly what you are going through. It must be doubly hard if you are looking on this treatment as 'closure' treatment but don't back yourself into a wall either and let your decision to call a halt on any further treatments come only when you both feel and agree the time is right; if you change your mind and find this isn't the closure treatment, well and good, that is okay. And remember, even a 1 percent chance is better than none...
As regards your specific treatment (CAAP Protocol) I am personally unaware of it but it seems quite complex from your description. Do you feel your clinic went through the ins and outs of it clearly with you? If you are unsure, don't be afraid to go back and ask them for clarification or find out if they have any case studies where similar treatment has worked; would they be able to put you in touch with other couples in their clinic who may have been through it? As regards getting thro' all the injections etc, just take it day by day and if it helps ask your husband to do the injecting. I also down-regulated by injection as I had a reaction to the sniffing and it was felt I mightn't be getting enough of the drug into my system and I actually found it easier. Your hormones, naturally, are going to be all over the place but try to focus on the fact that you will be only doing this treatment for a set time and, please God, it will result in a successful outcome. And, finally, you are definitely NOT mad - we have all felt that at one stage or another. You are doing what you feel you must do and there is nothing wrong or mad about that. If I hear anything about CAAP (what does it stand for, by the way?) I will be sure and pass it on and maybe others out there may know ,more. Good luck and I'll be interested to hear how things go for you. K
 8/17/2008 10:16:52 PM
A&C
99 posts


Re: EVER HEARD OF CAAP PROTOCOL

Hi Noellie,

I haven't heard about this but things change so quickly. All giving us better chance of making our dreams come through.

Myself and my hubbie attended the Hari clinic back in 2004. I was disagnosed with early menopause back in March2006 My FSH level was between 50-80.

So we gave ourselves the time to think. All through this time we said we just needed 1 embryo. We decided to go to Spain for our treatment and last year headed off to check out the clinic we picked. Our 1st cycle we got 13 egss and 11 embryos. But by the time transfer day we had none to transfer.I was numb.

So my Doctor said he would find new donor. Again we got same amounts and only 2 to transfer on day 6. So this time last year I  was waiting on my two week wait.... I am thrilled to said we had identical twins in Feb this year.

 

Like you we were the only couple without kids. I would have the odd person saying your married so many years.... I found it really hard to attend family gatherings and Christmas. But some how we got through it together.

People really don't understand the rollercoaster that you are on. I always had a fear of having a child and then I was terrifed of not having one.

You have to be kind to yourself and take time out . Try and spend time together. We used to go for walks on the beach and then find a place to have a nice cuppa or a pint ( or two) We would get sick of trying to been healthy. The odd time didn't hurt me.

I used to write down questions and then I would arrive in to the clinic with my list.  If you are unsure of anything phone the clinic.

Looking back I never thought  this would happen to me. And I never thought i would get through it. but with family friends we have.

Best of Luck,

Cats&Al

ps. we attended the NISIG meetings in Dublin. It was great to talk to people who understood. Not sure were your based.

 9/14/2008 8:09:48 PM
saise
2 posts


Re: EVER HEARD OF CAAP PROTOCOL

Hi Noellie, just trying to get familiar with people on the boards. Your treatment story seems like a tough one I was wondering how it was going for you. I waited 5 years before finally getting pregnant on my 4th IVF. Let us kmow how things are with you, I haven't heard of CAAP protocol so it would be interesting to compare your treatments. I wish you luck .

 

Sally xxx

 9/14/2008 9:23:02 PM
A&C
99 posts


Re: EVER HEARD OF CAAP PROTOCOL

Hi Sally

 

Great that someone new is on the boards. It's not very busy with post, but loads of people are checking it out.

My story is over on the Donor discussions. But once again we would have been lost without the help of all the people at NISIG and all who attend the meetings. Hope the meeting went well yesterday in Dublin.

Hugs to all

 

ps. It's good to talk (as the Ad said)

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